“But Hey, at least he never got measles.”
That’s my favorite snarky line of shit that I love to tack on the end of every post I put on facebook describing the insanity that is life with autism.
Let my cousin Robert illustrate my feelings.
Trust me, I much rather he’d gotten measles.
Fifteen years ago I met a group of parents like me, mostly youngins ourselves with little autistic people who we were trying to figure out. We’d share the little things like, “Gavin used ASL to sign ‘more’ today!” And we’d all be so excited! Messages would fly back and forth… “Did you hear it might be vaccines?” “Have you heard of the GFCF diet?”
We were figuring it out.
The sad thing is, I still see those comments from new parents.
The sadder thing is, I still see parents with kids who are now adults, posting, “He just signed ‘more’!!”
The saddest thing is, I am seeing way too may of us posting about things you ‘normals’ cannot imagine…
Violence, aggression, rage, constant seizures, no money, no insurance coverage for what our kids need, parents throwing their kids off bridges, stabbing them, gassing them… Useless spouses. Lack of family and friend support. Lack of services. Lack of adequate medical care. Not much has changed and it’s only getting worse and most of you don’t even have a clue.
It’s mind numbing.
Things with my own child reached a level where I decided that I was going to have to medicate him, at least for now, until we figured something else out. (Oh, I probably wouldn’t have to medicate him if I had the money to get him what he really needs, but I don’t. And I’m trying… but my hands are tied. There is no one or no where to send him so that I can work. It’s a vicious cycle.) I am still waiting, two months later, trying to find a doctor to see him who will manage medication.
Then you have Jerry Seinfeld “coming out” as autistic.
Yep. He thinks he is on the spectrum.
I was writing a nasty blog in my head about it for days, but so many of you did a fine job at telling Jerry to “GFY” that I don’t really need to. I will link to those, but I do have one thing to add…
The cluster fuck that is the ND crowd are the ones who used the terminology “coming out” and “closeted autistic”.
IF YOU CAN HIDE YOUR AUTISM IN A CLOSET… you DON’T HAVE AUTISM.
And for those of you confused on the meaning of “spectrum” –the word was used to define the range of children WHO MEET ALL OF THE DIAGNOSTIC CRITERIA, yet vary in severity. If you have ONE of the criteria, like maybe you’re a little socially awkward, that doesn’t put you on the autism spectrum…. that MEANS that you are a little fucking socially awkward.
And This: Screw you, Jerry (Seinfeld, “Autistic?”)
And This: Jerry Seinfeld’s Not helping…
I was looking for video clips to compare Jerry to someone who really has autism and stumbled upon this clip that 1. was not funny at all, not even a chuckle… and 2. offensive –as he calls a mail truck a “mentally handicapped jeep”. WTF? I’m not even sure what joke he was going for with that. You can watch it here. It’s painful.
Alison’s mom can’t get her inside easily when they get out of a car. This is a safety issue. Imagine when she’s 20. I recently met a guy whose mom had to put his sister in a home b/c mom blew out her back lifting her, now adult, daughter. Same fate for this mom, I’m certain.
This lady’s home is destroyed. Mine’s not this bad… yet.
This family fought and fought to get nursing care in the home. Only to catch one of them abusing their son.
Jerry… you are no where near the spectrum. I hereby fine you $8,000 for your insult and ignorance (and thinly veiled ‘r-word’ joke). Please deposit that money into my son’s fundraiser so that I can get him some much needed Neurofeedback, right here.
Autism moms, REAL autism moms… let’s get on our Unicorns and ride!