$506 a day. #WTFloriduh

I was thinking about this last night as I fell asleep. Wrote a whole blog in my head but of course I don’t remember it. I remember the end… $506 a day.

The state of Florida will pay nursing homes more than $506 a day to care for a sick child. Read that here in this story of a such a child… who died in the “care” of such a place.

$506 a day.

My son had a good day yesterday. He seemed happy. He was running around, laughing… listening to rock music, which is generally a no-no as such songs can set him off into a rage at times. He even dropped a crystal clear WH question when he saw me pouring maple syrup on meatballs (Yes… I have a problem). “Why are you putting maple syrup on the meatballs?” he asked… while pausing, grasping onto the furniture to brace himself from his blown mind. The good days are rare.

I’m still in the process of trying to find him some adequate help here in Florida.  He’s medically a wreck –but you know… with issues that doctors deny are real, or issues that get ignored because, “Well, he’s autistic!”  The doctors who know how to begin to help him are out of our price range.

People talk about how much autism “costs” a family,  they don’t talk about the “cost” to the child when there is no money. –it doesn’t cost me a thing, I don’t have a thing to spend.  Quality of life is the cost.

And Florida pays nursing homes over $506 a DAY.

Can you imagine how much $506 extra a MONTH could help me?
A WEEK? OMG! A week!
Why don’t they give families HALF that for in home care?

They don’t give families a DIME. Even Pennsylvania chipped in $22.10 a month. That number always made me laugh, but ask me how much I appreciated that half tank of gas. Florida doesn’t chip in SSP at all. Gavin gets $721 a month from SSI. Oh wait!! Cost of living raise next month!! $733. A month.

We live on that and a little bit of child support.

Ask me how much I wish there was someone who could adequately take care of my child during the day so that I could work. I would shovel dog shit right now if it meant a paycheck and a BREAK from my prison house.

I bet for $106 a day I could hire someone to care for him.
That would create a job #WTFloriduh!
And I could go back to work. Pay some taxes instead of qualifying for food stamps and medicaid. It would save the state $146,000 a year on the bill they are about to be footing because I don’t know how much longer I can care for my son at home, alone. Who are these brainless bureaucrats?

And the flood of kids like my son is coming.
The more I talk out about our struggles, the more emails I get from parents living the same nightmare. My situation isn’t rare.

The truth is, a typical nursing home couldn’t handle my son… not unless they drug him into a coma. And he’s a kid who can’t be drugged. When he was two they gave him a cocktail to knock him out for an MRI, he staggered around like an angry drunk –a trend that continues thru adulthood, only… he’s a giant now, not a toddler.
Those parents emailing me? Their kids are the same. Nothing works for them.  The brain and body damage is too much.

This is a societal problem.
You there… Mr. I-Don’t-Have-An-Autistic-Child. Who do you think is paying the bill?  Why are the autism parents the only ones who can envision the societal collapse coming our way?

Is that when our government will finally turn on the pharmaceutical industry? When the cost of caring for our vaccine injured kids exceeds the bribes, kickbacks, and campaign contributions that they currently enjoy?

 

MMR, all the harmy goodness, none of the perks.

I don’t watch the news much.
I do prefer my dramas scripted, but not the ones that pretend to be true. So I missed out on all this Mumps nonsense. I caught a whiff of it in my Facebook newsfeed.

Why the NHL lost control of its mumps outbreak.
The highlights:

“As far as I know, everybody received the immunization when they were young.”

“Throwing a wrench into all of this is that some players with the disease recently did receive a booster. ”

“That’s because the optimal level of antibody to protect from the virus is unknown.”

And this nugget:

“The takeaway here is that the mumps vaccine works, we just don’t know how long it works.”

Let me share something here that I posted on FB today:

I had an MMR vaccine as a kid, #1. I had an MMR vaccine when I went to basic training in 93, #2. In 95 they did my titers. Not immune. I had another MMR in 95, #3. (Unfortunately, 2 months before getting pregnant with my future autistic child. There was a small case study that showed it’s more common for women who had the MMR shortly before getting pregnant, or right after while breast feeding, to have kids who regressed into autism when THE kids had their MMR). I had titers done again for a job in 99. Not immune. I told them to go to hell with their vaccine.

How long it works? Well for me, I can tell you it didn’t even hold for two years.

I saw some arguments on Facebook from friends of friends, blaming the hypothetical unvaccinated child for traveling abroad and bringing measles or mumps home, and spreading them to a classmate with cancer who then dies.

Well, shit. That would be awful. But they are operating under the false notion that vaccines are effective.

They’re not. We’re swimming in the proof.

Your fully vaccinated child is no more protected than my unvaccinated child.

And let’s not forget that two Merck scientists turned whistle blowers and are taking Merck to court to show that Merck flat out LIED about the effectiveness of the Mumps vaccine. Merck is being sued for fraud. If found guilty, I’m sure the fine they receive will come back to them in insane profits anyway –I bet they are orgasmic over this outbreak of Mumps and all the talk that maybe we need yearly boosters along with our flu shots.

Are you that dumb?

Why can’t most people understand that a vaccine comes with a list of ‘cons’ and risks just like any pill you’d put in your mouth? Why are most people, who are so critical of the government in every other aspect of life, so willing to give them a pass on the vaccine issue?
Check yourself.

Through my research, I would say that a vaccine that offers LIFE LONG immunity for any disease isn’t worth the risk to me and mine. And you want me to take that risk every year?

Why do you think vaccines are safe when an extremely-hard-to-win-at vaccine court has paid out 3 BILLION in damages since its creation 26 years ago?

I still can’t understand those people who plant their flag in “perfectly safe” land when the manufacturers themselves know they aren’t safe, and sought protection from liability. When officials have called them “unavoidably unsafe.” –under the idea that we need herd immunity –yet… We don’t have herd immunity. It’s a myth.

And have you forgotten about the #CDCWhistleBlower? You know… that top CDC scientist, William Thompson, who told everyone where to look for the omitted data in fraudulent CDC studies that would have showed an association between MMR and autism? The story you refuse to educate yourselves about because you haven’t seen it discussed in the mainstream media, yet?

Vaccines are not effective.
Vaccines can kill you.
Vaccines can maim you.

Educate yourselves.