It took five minutes of me skimming their findings to comment:
“Did it ever occur to them that less kids are being Dx’d with SLD because as toxic exposures increase, the kids with SLD who were likely something mild like a dyslexia kid, or ADHD, are now the kids with a more severe Dx. The shift in Dx is because the child is more severely affected.”
Anyone who spends a couple days looking into how the forward thinking Doctors, Practioners, and Parents of today are treating autism successfully, they will see what we’ve all come to learn –which is that autism is a disorder of toxic overload. Research supports it. Labs support it. Clinical outcomes supports it. The fact that my 19 year old son’s ATEC score dropped from 100 to 51 after 4 months of a detox protocol really supports it.
(Link to the first TMR study on the Ioncleanse by AMD here. My son was in the second study. The second study showed even more improvements for kids of all ages with a more frequent protocol.)
This study looks at the numbers in 2000 and how they’ve shifted since then. My son was born in 1996. The kids in school in 2000 in the SLD category were the kids BEFORE the addition of the birth dose of Hep B. They were the beginning of the wave of new “Autism”. There was already a category for Autism in 2000. I promise you, no one would have confused Autism for SLD, even in 2000. There is no way you’d look at my toe running, hand flapping, non-verbal kid and say, “Hm. Call it SLD, we don’t know what it is!”
This article references NeuroTribes and the idea that the change in the diagnosing criteria in 1987 is the reason for the shift. 1987 vs. 2000. Are you telling me that no one in the school system or medical community picked up the DSM-IV until 2000? The shift we are seeing in the numbers in the diagnostic categories for this study shows what happens when you take genetically susceptible kids and pile more and more toxins into their bodies and brains. Kids are WORSE. Yes, the same number of kids are affected, but the severity is the issue.
So, I’m going to ask you to consider that our DNA has not changed significantly but that toxic exposure HAS increased.
Consider that some kids are genetically susceptible.
Consider that the numbers shifted each year because as toxic exposure went up, kids tipped from having a less severe issue like “reading comprehension problems” to full blown “autism”.
Consider the implications. Whether you believe it is vaccines, plastics chemicals, GMOs or whatever… Consider it.
So, thank you Chapman! Your study supports what myself and many in the field have been screaming from the mountain tops –you just were not equipped with all the info when you interpreted your findings. Please go back and look at it again with this information.
This meme recently caught a second wind over on my old facebook page, Autism Wars. People are sharing it. Good. I hope it makes some think.
Here is the story behind the moment the sentence “Vaccines are the leading cause of coincidence in the United States.” popped into my head. I was reading “Unraveling the Mystery of Autism and Pervasive Developmental Disorder” by Karen Seroussi, and she mentions how “fish” was her son’s last word, because there was an aquarium in the waiting room at the doctors office when she took him for his MMR. I about fell off my chair. Me Too. Gavin Too. “ishies” was his last word… because there was an aquarium in the waiting room at the doctors office when I took him for his MMR. I wondered how many moms had that same story.
I laughed to myself when I pictured the medical community saying, “Tapping on fish tanks and saying “Fish”” is linked to autism! Get rid of your fish tanks!!
I thought about all the other “coincidences” that all our kids have in common. The ear infections, the gut trouble, the eczema, the timing of the regression… All, ‘coincidentally’ following vaccines. And there it was… vaccines! Vaccines are to blame for the epidemic rise in coincidence in this country!
Insert: *eye roll*
You know, true scientific method doesn’t ignore even the smallest of coincidence. It studies it. Our CDC did study it… and they found that MMR vaccine was linked to an increase in Autism in black boys and individuals with isolated autism (which, is pretty much all our kids). And then they reworked those numbers to make it go away. Don’t believe me? Go see Vaxxed.
Don’t stay misinformed. You don’t have to. Fish tanks in doctors offices don’t cause autism. Vaccines can, however, and vaccines do. You have to look at what is biologically plausible. You have to understand that autism isn’t a “thing” in and of itself. It’s a label slapped on a box that holds a list of symptoms. What causes all those symptoms? Start here, 124 studies that support the vaccine/autism connection.
Edit 23 May 17: Yeah I still haven’t edited this. And I need to. But Dr. Ben Lynch wrote this blog post recently and addressed my misconceptions about some mutations, clinical significance, and what it means to be +/+, +/-, and -/- It’s a must read! Also at this point, the quick version of the update, I still recommend Genetic Genie because it’s free (make a donation) and a “quick start guide” of sorts. I still love Promethease because it’s fun… but don’t believe everything you read, you could really go down the rabbit hole, but as far as a truly informative interpretation —Stratagene is the way to go. FULL DISCLOSURE, I have not tried it yet. It’s on my to-do list for very soon, but I’ve talked to others who have used it and yes… It is the way to go. You can watch Dr Lynch’s YouTube videos about it –just search out his channel. So many good videos.
Edit 30 Mar 16: This needs to be updated. I will try to do that soon. 23andme is now $200
I am pretty sure that the test Ancestry does gives you the same raw data for $90 to $100 depending if it’s on sale, but let me look into it and I will update this post ASAP.
…it’s not what you think. Well, unless you are an autism parent, then I’m speaking your language.
98% of those with autism have the “Compound Hetero” MTHFR mutation, and I’ve said 13,845 times that if I got the same number of vaccines as a baby that kids get today… I would be autistic. No doubt in my mind. The autism doesn’t fall far from the tree in this house.
MTHFR = Methylenetetrahydrofolate reductase.
Say that three times fast.
So what is it? I’ll get to that in a minute…
Writing this blog is a nightmare. I’ve been promising it for months. But where to start, what to say… how to write something short and sweet and palatable… *sigh*
Let me start by saying that I hope you realize “Know it all” is a joke. I don’t. I have a tiny grasp on this whole MTHFR and 23andme thing and I am going to share what I’ve learned, and where I get my info and what I read. I’m going to answer the questions that I answer several times a week when asked. Now, it will all be in one place so that all I have to do is share a link! If I share some wrong info, speak up and I’ll edit it. And it goes without saying (yet here we are…), learn from your peers, but always double check, read and learn for yourself. So if I tell you something is true, read it for yourself and see if you agree with me, or disagree. /disclaimer.
There are more and more websites and blog posts coming out about what MTHFR is, so I am not really going to get into that too much. I am going to tell you what to do with your results after you get them back from 23andme.com, but there are a few things I do want to tell you in addition… so bear with me.
Know your MTHFR status before playing the supplement guessing game.
Back in the day –and even still now, we played pioneer! Bernie Rimland was onto to it when he realized that some kids got better on things like DMG and B6. Dr. Neubrander was studying MB12 shots as some kids were getting better with those, some kids were losing their diagnosis. Those first DAN docs realized that there was some metabolic disorder here at play in autism. The evidence was in the messed up labs we saw, and the improvements with diet and supplements.
However, not every kid was getting better. Some, like my son, were labeled “non-responders”; Gavin actually got worse on most supplements. I spent a bazillion dollars on $400/hr doctors and their supplements and shots. Had I known my son’s MTHFR mutations back then, it would have been money saved. Those MB12 shots did him no good, and maybe a little bit of harm. His mutations mean that he can only take Hydroxy B12.
Four years ago, before I knew about MTHFR, my neuro noticed my B12 was really low and signed me up for shots. The B12 shots most people get are the cheapest form, cyanocobalamin –this is also the worst form for us MTHFR’s. We have to use our much needed hydroxy B12 to break it down and deal with the cyanide molecule –I read that somewhere. It’s useless for us and can make things worse. I posted this to Facebook one day:
Here was another FB status I posted back then: “thinks the doctor is accidentally giving her sedatives instead of b12 shots… I can’t function… I slept in, took a 3 hour nap and now I am ready for bed!”
I was doing post-bacc work in Anthropology and Geology back then and had to drop out because I could not get out of bed and go to class. MTHFR derailed my life. It’s that serious. I’m suddenly sad thinking about it. I no longer have student aid to finish and owe my college over 2 large so they hold my transcripts. MTHFR!
When you learn what mutations you have, you can start to learn what supplements to avoid. I learned that Gavin is an over-methylator. It was the village that gave me that heads up. I figured out, through trial and error, that it was the melatonin that was making him go all hulk in school the following day. The village (Facebook) said to me, “Sounds like he over-methylates!” … WHAT?
Any supplement that increases methyl groups, needs to be used sparingly or avoided for my son. –quick note: niacin sucks up methyl groups… so if MY kid is in a rage from over methylating… I can give HIM a niacin.
Playing pioneer is a science and an art. Go with your gut. For too long I ignored my gut. I could see that supplements agitated him, but people would say to me, “That means it’s working and he needs it!! Plow through!” …No. Know your MTHFR status, it really helps to end the guessing game.
2. How to find your mutations. 23andme.
Yes, you can probably convince your health insurance to test for the common MTHFR genes SNPs. BUT…. it’s one tiny slice of the big picture. You need to know what is going on in the cycles leading up to the methylation cycle and the ones that follow.
You really need to drop the $99 on the 23andme DNA test. Each additional test is $79, and with shipping it averages $100 a test.
But Jane! 23andme got in trouble with the FDA for giving out health reports and they don’t do that anymore! Yes!! You are correct, but there are third party websites that you can run your raw data thru to get all the juicy info! 23andme gives you great ancestry info (I love finding new cousins!) AND it gives you a raw data file of your DNA to upload to those third party sites. If you order through this link, I get a $10 amazon gift card for referring you. Free Amazon money keeps me in supplements and Kidz Bop albums. Thanks in advance!
What to do with that raw data.
1. Genetic Genie.
It’s free, but they do ask for a donation. Give them some money.
This is a bit of a *lite* report, but a great place to start. You download your raw genetic data from 23andme after it’s made available to you, and then upload it to this site. Genetic Genie will spit you out a basic report to let you know your MTHFR, CBS, COMT, VDR and a few other basics. Along with some general info on what the mutations may mean. There is also a detox pathway report, and I admit… I haven’t even begun to learn what all that means, yet.
SIDE BAR: Just because you have a mutation, doesn’t mean it’s causing you a problem… but it could and it might be. I will link to some places later where you can read and learn more. You should have lab work done to help you determine *if* you have a problem caused by these gene mutations. Sometimes mutations cancel each other out in a weird way, so you need to follow up with labs. For example… for all our mutations… my kids folate levels are fine. Who knows why. Seriously… who knows why?? You’d think their folate would be low, we don’t supplement!
$5 per report. This one is close to the old 23andme health reports. You kinda have to search for things and know what you are looking for. So… it’s a good one to do to satisfy your curiosity. They look at all your tested genes and tell you what they *may* mean. For example… my youngest is likely to die before 10 a.m. and I am a night time croaker. lol. Whatever… I learned there that I am less likely to have a-fib and that I am a likely sprinter with fast twitch muscles, and have blue eyes… Here’s the thing… I am a long distance runner, never could sprint, and I have brown eyes. So… genes are not your destiny and this is NEW. Really… think about how NEW this science is! We have a lot to learn.
I learned that my youngest shouldn’t have Motrin, he’s slow to metabolize it and it could cause GI trouble.
You can run this one for $5 and then you can look up your MTHFR et al. genes and have fun reading over everything else it tells you.
Some things listed under my “bad”? CAD! Autism! Male pattern baldness!! O.o (the rumors are NOT TRUE!)
AUTISM??? You mean we can test for that? *eye roll*
Yep, for $99. If you have these MTHFR (from here on out when I say MTHFR, assume I mean the WHOLE big picture… MTHFR, CBS, COMT, NOS, VDR, BHMT, MTR, GAD, MAO, etc.) mutations you need to skip the vaccines!
I was looking over my “bad” list and found this… why is this bad? “This genotype may provide resistance to depression when subjected to repeated defeat” ??
*sings* I get knocked down… but I get up again… you’re never gonna keep me down… (it’s in your head now, isn’t it? You’re welcome!)
3. MTHFR Support, Sterling’s App
$30 each. Pricey, yeah, especially when you’re looking at your whole family… but this is a GOOD one. They just added a bunch of new SNPs, too. I bought the new version of the report recently and they’ve added a ton, plus it comes with free updates from here on out. Worth it, as this is an evolving science.
This one will give you hours and hours… and hours… and hours of future research. It’s a 42 page PDF file full of info.
Here is a glimpse… look at my GAD (glutamate) mutations… is it any wonder that MSG sends me into a twitchy seizure wonderland for a couple days after eating it? By the way, you can Google that stuff for more info… for example: GAD1 C10180T that can take you to more info. The old Sterling’s App had direct links in it… not sure why those are missing in the new one. I will email and ask them.
Red = homozygous mutations.
Yellow = heterozygous mutations.
Green = no mutation, nothing to see here, please return to your homes….
4. Livewello App
I have no opinion on this, because I’ve not tried it. I really ought to.
If you have used it, write up your thoughts and I will add them here.
I believe it’s $20 per person and it looks promising.
5. Dr. Amy’s Methylation Pathway Analysis (MPA) Free. But…
Yes, you should do it, there is a lot of good info there and pretty picture of cellular metabolism cycles! Who doesn’t enjoy that shiz? But if you are new to this, it’s going to be wicked confusing. You will want to read Yasko’s books first. And get to know Dr. Ben’s stuff first, too (links to come). Also, here is what I noticed… it doesn’t cross-check with contraindicated stuff… so… it might recommend one supplement that it *thinks* you need based on one mutation, but then you know it’s something you should avoid because of a another mutation.
Also, Dr Amy has a ton of great supplements in her store for you to try. If you are like me… poor and doing this on your own… you will CRY. Out of curiosities sake, I filled my shopping cart one day with JUST the supplements ONE of my sons would need to get started with her “groundwork” recommended supplements… and I quit when the the total hit $1,000.
Those are the ones I am familiar with. If you know of more, share in the comments.
1. Order your 23andme tests. Your kids have these mutations, I’d bet on it… and so do you. Moms. Dads. We need to live forever. We NEED to know. Sometimes I ponder all those friends and family members we’ve known to have dropped dead of a heart attack in their 30s or 40s or 50s and we all sat around saying, “WHY?? He/She was so young!” I wonder…
Funny, I did a quick Google and came across this… no mention of MTHFR, but that is exactly what’s going on here. Homocysteine levels, B vitamins, folate… MTHFR, baby!
2. Run the raw data thru an app to find out your MTHFR status.
3. Get educated.
Onto Part 2. The above, Part 1… that is for you people with the idea in your head already that you need to do the test, or maybe you already have and don’t know what to do with your results. Maybe, however, some of you have no MTHFR’ing idea what I am talking about.
Part 2. What is MTHFR/Where to go to learn more.
I am not going to reinvent the wheel, and I am NO authority here.
So let me retrace my steps for you with lots of links, OK?
Quick summary (aka How I explained it to my 10 year old): The methylation cycle produces methyl groups that are needed for many processes in the body. They are wicked important. Take my word for it 😉 All kinds of cool shiz is going on in there, like the break down of B vitamins and stuff. Got it?? If it’s broken… you’re broken. Your cells are not getting the nutrients that they need to work right and it’s all downhill from there.
I heard of MTHFR and “over-methylating” a couple years before I took the plunge. It just seemed like *ONE MORE THING* to give me a headache, to overwhelm me. But one day I clicked on a recording of an interview done by Dr. Ben Lynch that was an overview on MTHFR and the light bulb went off. I had already heard the rumblings that it’s likely in kids with autism (Specifically the compound hetero combo of 1298 and 677) –but in that interview he stated it was even more common in Southern Italians. Well… I have this lovely “Dysfunctional Family Tree” (that’s what I call it). It’s the Southern Italian side of my family… and it’s FULL of conditions associated with MTHFR mutations. Each generation a little worse (as toxin exposure increased). I started to read Dr. Lynch’s website, putting the pieces together in my over-worked brain and knew, KNEW, that we had these mutations before I even saw the test results –and I was right.
You know, I found out that Gavin has spina bifida occulta. He has Chiari, scoliosis… These are neural tube issues. These are signs of MTHFR. The more you read –those light bulbs will start exploding over your head!
Ben has a little booklet too, a brief summary. He’s working on a bigger book. I can’t wait!!! MTHFR Basics. It’s 99 cents, or free with Kindle Unlimited, or free in the Prime lending library.
NOTE: In that first interview I listened to, while MTHFR mutations were more common in Southern Italians, they had less symptoms… Diet? Diet! I say again, genes are not your destiny. Clean living, diet and detox can fix a lot of these MTHFRin’ problems!
God I love her… her brain. When she talks it’s this avalanche of amazing and I have to watch and re-watch and pause and take notes. I am certain she dreams about cellular metabolism every time she catches some sleep. If she sleeps…
Her wait list was so long that she stopped taking on patients and just puts all the info on her websites for free in an effort to help as many kids as she can. Rock star.
NOTE: There are a couple mutations that Dr. Amy’s DNA test checks for that 23andme does NOT test for (SOUX and one of the BHMTs off the top of my head), but her test is $500. Yeah. So if you have the $500, go for it. Someday I *might* do that test for Gavin as I try to untangle the mess that is his genome.
She has a book, too. If you are new to this, it’s a good read. I didn’t learn much new, so if you are a pro… I guess you can skip it, but for $9, whatever. Feel Good Nutrigenomics. The more detailed stuff is on her website. But, I highly recommend this book for noobs!
Watch these videos. Her video about the lithium connection is what got me to have my son’s levels tested and there was nothing there, they ran the test twice to make sure. Kid was seriously low on lithium and lithium is pretty damn important. Also, one of the new things I learned from her new book, was that you need to have lithium levels up before supplementing with B12. So I pulled back on his B12 until his I run labs again to check his lithium levels.
It’s all pretty damn confusing. It really is… At times I slam the books shut and walk away.
I wish I could hold your hand and walk you through it, but I’m still learning as I go. I could sit here and list the things I remember, but my memory is foggy and I don’t want to give you bad info. You really need to start doing the reading for yourself and let your own light bulbs go off. Read/Watch/Listen a little bit everyday… or a lot.
I dream of a day when someone creates an app where we upload our data and it spits out every last supplement with a diet tailored perfectly for each of us. Maybe 5 years from now… But for now… be a pioneer!
Search out groups on Facebook, there are several. I can’t really recommend because while I am member of a few, I don’t follow them too closely; I can’t tell you the best ones. Ask your friends.
Once you know your specific mutations you can even search for groups specific to that. My youngest has a homozygous mutation on 677, I found a group for that! (This means he only methylates at 30%) I guess you can start here though, this group has over 11K members.
Follow Dr Ben and Yasko on Facebook, too.
Some youtube videos:
I feel like this is more than enough today. In the future I will post smaller blogs about specific issue.
Autism is Neurological Damage. Let that cross your blood brain barrier and sink in.
What do you think neurological damage should look like? I know I sound like a broken record, but the average person cannot begin to understand that vaccines might be causing autism, until they fully understand what autism is.
We have a bad track record in this country –and I suppose the world, when it comes to chalking up things we don’t understand to mythical powers or medical mysteries. One example, for most of history, epilepsy was seen as something divine –until we figured out it’s neurological.
Today the entire field of psychiatry fits into this box. If we can’t see the obvious medical connection we tell the patient that the problem is all in their head.
Autism got tossed into the psychiatry box. The first theory to be accepted by medical professionals was that it stemmed from bad parenting –mainly a cold “refrigerator” mother. Luckily, Dr. Bernie Rimland came along –his son was autistic and he knew damn well his wife was a great mother. Bernie changed that mistaken theory –we suddenly realized that autism was neurological.
But from there, “professionals” chalked it up to kids being differently wired. That never sat right with me. The brain is amazingly plastic. If they were differently wired they’d still be functional –and I wasn’t seeing “functional” in my own son and the children of others. I saw tics and odd body postures and disordered speech and language –I saw brain damage. Also, we noticed that changing the diet and giving certain supplements helped or even made some kids lose their diagnosis. This wasn’t ‘hard wiring’ –this was medical, metabolic.
It was 2000 when I finally started listening to my new friends about vaccines. I didn’t understand how a vaccine could cause a brain disorder. My lack of comprehension was directly related to my lack of knowledge. First off, I had no clue what was in vaccine. I had NOT ONE CLUE that there was mercury, polysorbate 80, formaldehyde, aluminum, human DNA, chicken DNA, etc. I had no idea that our immune system is in our gut. I had no idea that damaged guts can lose that tight juncture in their cells and ‘leak’ proteins out into the blood stream where they should never be. I had no idea that these proteins could slip past the blood brain barrier. I had no idea that the mercury could cross the BBB. I had no idea that there were kids with MTHFR and other genetic mutations that would make them more susceptible to damage –who couldn’t detox those heavy metals as well as other children. The more I read, the more it became obvious that vaccines causing brain damage that presents as “autism” is biologically plausible. I admit to being ignorant.
I know that some of you still are. That you sit back and listen to the news anchors on the TV tell you what was found in the latest study –and you with your lack of medical knowledge and lack of knowledge about the politics of this all, and the history of vaccines, you take it at face value. Why would they lie? They lie because either they are ignorant, too –or because their fat paychecks depend on it.
But back to autism. How can you not see that autism is brain damage? Autism isn’t a thing in and of itself. Time to sound like a broken record again… Autism is a label that is slapped on a box, and in that box is a pile of symptoms, and if you have enough of those symptoms you win the diagnosis. There is no such thing as “Autism” –it is a classification system, a label.
So let’s look at autism…
By looking at other neurological disorders and diseases and injuries.
I remember 2000, when I still needed a little more convincing. That is when a friend sent me a link to a video, a video showing children who were exposed to mercury in Minamata Japan. (If you are unfamiliar, Google is your friend) –and what caught my eye right away was how similar a lot of the body postures were in those mercury poisoned in Minamata and our “autistics”. Mercury damages the brain. Autism is brain damage. Now, a lot of people died in Minamata, some were severely affected… some slightly. And those slightly affected all looked like autistic kids to me. In the following video at minute two… if you didn’t know this was a Minamata video, you’d think it was an autism video. I suggest you check out all the videos on youtube concerning Minamata “Disease”
This is a great one too:
So, Minamata popped back into my head last night while I was rewatching “Silent Epidemic, The Untold Story of Vaccines” you really need to watch the whole thing. But check out the montage at minute 16:55 –that is what neurological damage looks like. And that is called “autism”.
Now let me say, I don’t agree that vaccines are the only thing that’s changed in the last 25 years –they are the major player and biggest culprit, yes. But we also don’t eat real food anymore and the food we eat is mostly poisoned and nutritionally void or genetically altered. We are dealing with thousands upon thousands of chemicals in our environment that were never tested for long term safety. Babies today are born with hundreds of chemicals in their cord blood… BUT… If we are willing to admit that there is an environmental trigger –that something we are eating, breathing or touching is causing this rise (and most scientists and doctors DO admit this) THEN WHY do we snap to attention when vaccines are mentioned, and toe the company line with a loud chorus of, “Oh, but we know it’s not the vaccines!” Injecting chemicals into the body is much worse than eating, breathing or touching. We don’t “know it’s not the vaccines” because the proper studies HAVE NOT BEEN DONE.
Autism is brain damage.
Here, at 4:35 is a child with an auto-immune encephalitis… brain damage… it looks like autism:
Here is a child with cerebral palsy, it looks like autism.
These kids with TBI have “features of autism”
Brain Injury from a drug overdose, looks like autism
Look at the poor motor planning in an apraxia patient after a stroke. I was told in my speech path classes that apraxia/dyspraxia
is more common in kids now, but it’s controversial because in adults it follows a brain injury and in kids there is NO BRAIN INJURY. Says who? Vaccines cause brain injury. The adult:
Vaccines are known to cause brain injuries.
Why do you deny that some of us watched our children regress into brain injury right after receiving vaccines that have possible brain injury as a known AND COMPENSATABLE side effect? Compensatable through the NVICP which has paid out over $3billion in damages to vaccine injured…
–all because you do not understand what autism is.
–what ALL this is.
Set aside the debate for a few minutes now and really think about what is happening to generations of children. Just think about it.
Here is some kids dissertation on Minamata, check it out, it’s well worth the 13 minutes.
Also… the old argument back in the day was methyl vs. ethyl mercury. I am not even going to get into that. That is a whole other blog post… or book chapter… or book. You can google. Bottom line, they can cause the same damage.
I say again, autism is brain damage. Vaccines can cause brain damage. Vaccines can cause autism.